That third infusion

That third infusion. . . .

I saw Dr. Flores recently, a couple of weeks after the third infusion for Crohn’s. I had wonderful news for her: I’d been able to eat some solid foods, tentatively, for nearly a week! Scrambled eggs, roasted sweet potato, peanut butter toast (gluten free), a little pot roast from the Machine Shed Restaurant (hurrah for leftovers). And no Pepto Bismol! (It helped make sure everything tummywise was quiet so I could even go to an appointment (Favorite Guy’s or my own) or an infusion.

You can’t imagine how thankful I am. 

Dr. Flores had news for me: I’m anemic. You don’t get much protein from broth, bananas, toast, and Jell-O. That explains a worsening exhaustion, even a light-headedness, and having to give up most of my mosey/slog at daybreak. I’ve been walking just three blocks, then home, but I’m grateful to be able to get that far. Early morning Iowa skies are so winsome, treefrogs singing, an owl heading home after a night of hunting, no dogs barking yet.

Thanks to you followers for praying for the worst misery to lift during those touch-and-go summer months. Those prayers have been answered!

More news: My positive response to the third infusion means I’m considered ready for maintenance. They are checking to see if I’m also a candidate for injections (here at home every two weeks) instead of two-hour infusions at the downtown hospital (and parking challenges) every two months. A nurse told me I’d get used to stabbing myself. Stay tuned.

I’ve made peace with fibromyalgia. As long as I give it three naps a day, it usually allows me 3-4 hours between to write and get household things done. (That was before I bumped into Crohn’s, but I’m hopeful it will return. )My Favorite Guy is in the middle of his own health challenges, but we live in a comfortable home and we have each other. We are blessed.

These days I’m praying for physical and writing energy to return. Leaning into being joyful in hope, patient in affliction, and faithful in prayer. Praise God from whom all blessings flow!

 

33 comments

  1. So glad you are feeling some positive results and perhaps a less invasive treatment schedule ahead, Joy! Sending prayers for both you and your husband as you deal with health challenges, that you continue to find relief and beauty in each and every day.

  2. Hugs, Joy. I’m so happy for you. Patience and faith, my friend. Let’s stay in touch on fibromyalgia, though. Right now, I’m having a massive flare. Coupled with some new exercises for “prehab” before my shoulder surgery, I find that there’s simply too much pain. I could use some prayer myself!

    • Bless you, Wynne. Especially since I need to avoid the sun, I regularly see the sunrise. . . and these days sunset. Twelve hours apart and squeezing our daylight, huh!

  3. Praise God for answering the prayers of your many blogger friends. It’s fabulous news that you’re on the upswing and able to eat more and do more. Your acceptance of whatever is God’s will is a wonderful testimony of your faith. 🙂

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