JAK2 and other monkey wrenches

My Favorite Guy has added a chemotherapy capsule to his daily diet of Parkinson’s meds. A blood disorder, maybe inherited, called JAK2. Octogenarianism isn’t what we’d anticipated.

Taken a couple of years ago

Our life together gets a little smaller each week, learning to navigate these new medical places and learning almost a new language. Guy, a Vietnam vet, is still my caretaker, since age-related drawbacks have added to the dailiness of fibromyalgia symptoms, punctuated by diverticulitis. At some point, we may not be able to figure out who is doing the most caretaking, but we’re thankful for caring medical people and friends who keep track of us well.

Probably the hardest part for both of us is dealing with the challenges of exhaustion, some days more than others.

I have so little energy and haven’t been able to keep up with several websites I follow. I know those of you who usually get feedback from me will understand.

My next manuscript was to be finished by now, or nearly so. It looks now like it will be after the first of the year.

But God has given us both eighty years this side of heaven, fifty-eight of them together. We’re aging gratefully.

36 comments

  1. You two are an inspiration to everyone younger, both in the length of your marriage to each other and your production in spite of health issues. I’ll be turning 70 soon, and I hope I can age as gracefully as you two are.

  2. Sorry for this added burden, it’s an unfortunate accompaniment to aging. Being the same age and having been blessed with the same number of years of marriage, I get the “who’s taking are of whom” thing. My prayers are with you.

    • Guy’s mother is 101 (and may not last the week–he’s up with them today) so we think we’re “not old,” even though those number say yes we are. Thank you, Bob. Trusting the Lord with each new day.

  3. Oh Joy, I am so sorry things are so rough right now for you and Guy. I am praying for some relief for you both–and some joy (NOT a pun). XO

  4. Wishing you well as you navigate the continuing challenges life presents you. You are so fortunate to have each other and for so long together! Amazing all the things you’ve accomplished since taking on the Leora stories.

  5. You both have a positive outlook on the past and present! You two make a match that many of us can only dream of! Joy and Guy, you are both in my prayers.

  6. You and Guy both appear to be a customized fit. You both “look” vibrant in your picture together. I’ve been praying for you daily, Joy, but I’ll also include Guy now. God bless you both. 🙂

  7. You have an amazing life together Joy and you still take the time to share your wonderful family history with us. I know the fatigue saps the will at times to keep going but it sounds like you are both in good hands and have a wonderful support system. I am very grateful for the support you provide me on websites such as Linkedin and it is appreciated.♥

    • Oh, bless you, Sally. All the extra office visits are challenging, and he’s got four already for December. The new one was a surprise. It just showed up during a preop exam for an outpatient procedure, but they sent him to a cancer center instead. Looks like it’s something genetic so he’s warned other family members.

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